Tuesday 24 February 2015

To Declare or not to declare....that is THE question!



I do not travel much but recently I have had to travel to Europe for business.  It was on a recent trip whilst travelling through airport security that I became aware of a very unique Ostomy question. 
To declare I have a stoma or not declare?

Let me explain how this question arose:
 On the outbound journey I decided to treat my wife to a new bottle of perfume (I know nice aren’t I.)  It wasn’t until the return journey that I realized this may have been a mistake.  I had purchased the 120ml bottle of perfume after I had passed through security at Stanstead.  On my return in Belfast I now had to take my expensive 125ml bottle of perfume through the 100ml outbound security limit!  Fortunately (although probably not a good thing) the perfume was not flagged as an issue when scanned, however, I was!

Even after taking off my belt & shoes I had still failed the metal detector.  In Belfast they seem to of upgraded from the normal ‘pat down’ to a new electronic system.  You basically stand in a pod and the scanner makes a 360 degree sweep around you (see image below).  It then by the magic of technology displays any areas of ‘interest’.  I assume abnormalities/lumps bumps from what it has been programmed to think the ‘average’ human body looks like when scanned.  


You can probably now see the reason for my original question.  The machine had flagged my stoma site as ‘an area of interest’  I was then called over to be padded down in that area the traditional way but focusing on this area.

Now I know there are plenty of Ostomists in the UK & Northern Ireland but like me before my op does the rest of the population have any idea on what a stoma is?  Would this airport security guard have any idea of this strange bulge on my stomach with liquid inside.  As I wear a midi bag I must also add a bag containing what felt like over 125ml of liquid (I had been queuing for 30mins and my flight was shortly after dinner!)
What should I do?  My stoma nurses hadn’t covered this when they told me about the new challenges I would face as an Ostomist.  In this situation I’ll be honest I panicked, I didn’t say anything and ironically the security guard patted down the area, seemed happy and sent me on my way.

Whilst on the returning flight it made me think, should I declare I have a stoma?  I would’ve hated to make a scene when one wasn’t necessary.  I am happy to tell people I have an Ostomy bag, but would I want to be escorted to an isolated room to be searched?  In this security conscious times it was also a concern that the security guard hadn’t noticed (or had he?)

During my previous journeys I had passed through security with no issues.  I asked some friends in an Ostomy group about their experiences.  It was definitely a mixed bag of responses.
Since this flight I have found that you can you can get a passport of sorts for you Ostomy.  A small wallet sized card that explained in several different languages what this ‘strange’ bag of liquid stuck to your body actually is.  I have decided that being a forward thinking Ostomist next time this occurs I will use this card and explain.  Perhaps all airport security guards aren’t educated on what an Ostomy bag is.  By highlighting this to them in a professional way perhaps it could save someone else the embarrassment of it being ‘discovered’
 To declare or not to declare, that is the ostomy question…
If one new person learns what an Ostomy is and they educate 4 people and they then educate 4 people, well…you get the idea :)

Friday 13 February 2015

Cancerversiary

The start of every new year is always an interesting one. 3 dates, 3 very important numbers will always be with me.
8, 16 & 31

8th Feb = Cancer diagnosis
16th March = operation removing tumor, large intestine and leaving me with a stoma.
31st March = Confirmation that Cancer had not spread, that no further treatment was required at this stage. No chemo no radiotherapy.:) :) :) #LUCKY

3 significant fixed points in time. At the time I knew these events would shape my life. Little did I know how much!

This is probably the first year where I actually forgot the most relevant date.  On 8th My wife gave me a kiss on the cheek and asked me was I 'ok'? in a way that I had to question what she meant?  

It wasn't until she reminded me of the date that I realized. It has been a busy start to 2015! Commissioned blogs, upping fitness activities at the gym and as part of the Nuclear Races Team.  Work is always busy at the start of every year as sales budgets are finalised for the the coming year.  

Whilst all of this distraction is buzzing around in the background I am always concious that my family are not left out. Spending time with Carley & Jack is THE most important part of my life.  Whilst its nice to have my own interests its a battle to balance everything.

Actually...people are right when I list down everything I am really busy.  How do I find the time to fit everything in? I guess the key is: 
IF SOMETHING IS WORTH DOING ITS WORTH MAKING THE TIME

Anyway back to my original point.  My 'Cancerversary'.  I can honestly say this is probably the first year in the last 8 years where I have been 'comfortable' in my own skin. That is not to say vanity still doesn't play its part.

After all the hard work and perseverance my life almost feels in balance?  My family, my fitness and my work.  Each existing in harmony.  Trust me I'll probably regret saying this as everything comes crashing down around me, but at the moment, it is honestly what I feel.  I am in control, 
I am in the driving seat!



Perhaps that is it?  Perhaps for the first time in 8 years I feel like I am in control of my own life?  Its not about Cancer, its not about 'dealing' with my Ostomy/stoma. Over the last 8 years I have simply been a passenger along for the journey.

Over the last 12 months I have turned having an Ostomy and Beating Cancer into a positive.  Using it to drive myself forward.  It has felt less of a weight to carry and more like the fuel that drives me!

(Sorry a lot of analogies I know but REALLY hard to put these feeling into words!)

As strange as it may seem I do not always look back negatively about what happened to me 8 years ago.  I have a healthy respect for Cancer, for being an Ostomist and how delicate our existance can be.  

BUT......

That cross road in my life is why I am here now.  Why I am raising awareness for Bowel Cancer and Ostomists.  Why my family are so important to me.  Why I am part of the Nuclear Races team and training hard. 

As I am sure I have mentioned before I do not subscribe to the Y.O.L.O. (you only live once) or live like its your last day.  However, I cannot ignore how lucky I am to be here, right here, right now!

Respect the past, enjoy today.....but most importantly look forward to tomorrow :)




Wednesday 4 February 2015

Cancer Its an old persons disease.....is it?

Today is Cancer awareness day.

As I am sure anyone watching the news or listening to the radio has heard Caner UK now claim it will effect one in two of us. A very scary statistic  Whilst I am all for awareness, fund raising and any general activities regrading Caner awareness I did have a concern over something that followed this statement.

Whilst you cant argue with their research the 'reasons' they gave for this change was based around people living longer and Cancer being an 'old persons' disease.

I'm not sure why hearing this statistic has bothered me?  Why it prompted putting virtual pen to paper?

I was 28 when I was diagnosed.  Far from being classified as 'old'  Over the years I have also spoken and met with many many people who have also fought and beat cancer, again many of them far from 'old'.  I have also had the misfortune of hearing about many people that had lost their personal battles with Cancer.  One person very close to home.  A family friend who was diagnosed with Bowel Cancer only a few short months after myself.  Darren battled valiantly for many years but was finally taken from us an his young family

Cancer was the reason I started this blog but I also started to help raise awareness for people in my demographic.  Mid 20-30 active people.  Labeling Cancer in this way as an old persons disease (whilst potentially accurate) concerns me.

I had always thought of Cancer as an old persons disease and something that would never happen to me...until it did.  Don't misunderstand this post I am not try to scare everyone into being afraid of the scary Cancer Bogey man.  My intention is to only ensure that people have a healthy respect for it



So WHY hearing this statistic has bothered me?  WHY has it prompted putting virtual pen to paper?
Perhaps it is because my own diagnosis is only a few short days away?

2015 marks my 8th year of beating bowel cancer.  My 3rd since the 'all clear'  Perhaps it subconsciously reminded me of how young I was and how lucky I am that I am still here?

I'm having trouble trying to explain how I feel?  Perhaps this analogy will make it clearer
I don't have a fear of heights, I have a fear of falling!

So anyway back to my original point.  Yes, Cancer statistics cannot be ignored. The increase of diagnosis in the older generation is increasing. (however this could also be becuase the tools we have for earlier diagnosis have also improved? But that's a bit too deep for even my blogs!  lol )

I guess what I am saying is don't be complacent, don't assume it will not happen to me.  If you have any suspicions, any lumps or bumps that were not there before, get them checked out.  Dont assume its an old persons disease and that it will never happen to me!


http://www.cancerresearchuk.org/cancer-info/spotcancerearly/